Friday, June 30, 2017

Seizures continue

Unfortunately, Ryan had 2 more seizures since my last post. He had another one at his special needs school last Friday and then one this past Wednesday first thing in the morning. Neither one was very long, and neither one required a 911 call, Diastat medicine, or a hospital visit. The one at school was about 60 seconds long and the one at home lasted about 4 minutes.

Video of Ryan's seizure at home on Wednesday, 6/28/17.


As you watch the video, it's hard to even tell that he's having a seizure. I noticed that his movements and demeanor seemed a little off (others that don't know him as well would probably not even notice) and picked him up out of his bed and moved him onto my bed. Picking him up is the best way to confirm the seizure activity because he displays no head control. I had Thomas pick him up during this video to show what I mean by that.

Ryan was fine all the other days in between the two seizures and even on the days when it happened, afterwards, he was totally normal and happy and in a good mood.

After each seizure, I would call into his neurologist's office, let them know what happened and then wait for a call back to let me know if we needed to up his med dosage again or if there were any other instructions. In the span of 2 weeks, on his Keppra medicine, we went from 1.6 ml to 2 ml, to 2.6 and now to 3 ml. We're still not at the max of what he can safely take but it feels like it's been a huge jump.

After Wednesday's seizure, when I called the neuro office, I said that I felt like it was time for us to come in for a visit. I felt like after having 4 seizures within a week and a half, my concern level was way up and it was time for him to be seen. Shortly thereafter, we got an appointment for this morning (Friday). So Thomas and I took Ryan in to see Dr. Taft this morning.

Basically, there wasn't any earth shattering advice or revelations that came out of the appointment, but Dr. Taft did said that he wanted us to go ahead and bump up the Keppra dosage to 3 ml, as I noted above, and he ordered blood work to be done so he could test how quickly Ryan is metabolizing his medicine, which will help to make better, more educated, dosage/med suggestions. He was encouraged by how well Ryan looked and by the fact that we aren't seeing any major changes in him, despite the four seizures. It's like other than those few minutes that the seizure is happening, he's been totally fine.

I pray that the increased dosage will keep Ryan seizure-free for a long while. I also pray that the blood work that we'll have done next week will provide Dr. Taft with some good knowledge to help us move forward in Ryan's medical plans and decisions.

Pictures from the appointment this morning:







Four Generations

I had a little goal in mind during our recent visit to Virginia over the weekend. I wanted to get a picture of all the Peery guys - 4 generations - all the way from Thomas's Granddad down to the boys. I thought about it last Christmas when we were all together and I missed the opportunity, so this time I was set on getting this picture!

Stokes, Granddad, Ryan, Abby, Thomas and William
LOTS of handsome fellas here!

So we were in Virginia last weekend visiting with Thomas's family and we really, really enjoyed the weekend. It feels like we're never there long enough and we try to cram too many things into a short period of time, and never feel like we get to do all that we had set out or wanted to do, but hey, maybe next time we'll stay longer. I think Thomas may take a Friday off work the next time we visit Tazewell, just so we'll have some more time!

We drove up on Friday after work and didn't get there until almost 10 pm, after a dinner/potty break on the way. The boys watched Disney movies in the van and were really good for the whole drive, but surprisingly they didn't sleep at all.

On Saturday they woke up and were ready to go! They wanted to do all the fun things that they love about being at Abby's house/in Tazewell: seeing the cows, riding the tractor, visiting with family and their buddy Davis, etc. Abby's land and house are a little boy's paradise and he really makes it fun for them to be there.

Checking out Abby's pond and cows
It's a beautiful view from Thomas's bedroom window
After breakfast and getting dressed, we went over to Joey and Lisa's house to have a little play date with Davis and our boys. It's so impressive to me that they all remember each other even though they only see one another once or twice a year! All the little guys had fun playing (Davis has a super fun set up at his house, too!) and Lisa and I didn't do our typical shopping trip, and just stayed there and hung out this time. We weren't able to stay as long as we would have liked because we were busy little bees and needed to go meet up with Abby for lunch. No worries, we'll be getting lots of time with this crew later on when we go to the beach!

William and Davis

William, Stokes, Ryan and Davis
These kids will be life long friends!

I've been hearing about this new restaurant on Main Street in Tazewell called Seven and couldn't wait to try it! We were planning to go there for dinner on Saturday night, but made a switch up in the plans and went for lunch instead. I enjoyed it so much! Thomas got the burger and it was amazing. I would highly recommend and plan to go back whenever I can when we're in Tazewell.
Seven website: www.dineatseven.com


Ryan, William and Abby (in the middle of a story!)

Stokes and Dada

William with the big cowboy boot up front

Thomas and the boys strolling down Main Street

Checking out this cool statue

William, Mama and Stokes
After lunch we were all feeling a little sleepy and went home to take a nap (well...the boys and I took a nap). Thomas got to hang out on Abby's back deck and enjoy the incredibly beautiful scenery and sweet Virginia mountain breeze. Thomas loves being back at home and I think it settles his mind and fills his heart.

After naps, we went over to Granddad and GranO's house to visit with them along with Fifi, Jerry and Mag. Again, this time spent was too short and we were constrained by time and plans. We always wish we could stay longer visiting with loved ones.

We love Abby's back yard!
When we got to Granddad's we saw that Mag had her convertible over there. These car-loving boys simply could not resist getting in there and "driving"! We all got a hoot out of it.

Stokes...3 going on 16

What a stinker!

William
Once Abby arrived at Granddad's, I was able to get the coveted 4 Generation picture that I had been hoping for!



Fifi with Thomas and Ryan

Abby and Mag with William and Stokes

Mag took S & W for a ride around Granddad's driveway.
They were PUMPED!

Woo hoo!!!!!!

We left from Granddad's and went to dinner at Fisher and Company BBQ. Check them out on Facebook. We've had takeout from here before while we've been at Abby's but we'd never been there in person to eat. The food is always good! We were in a time crunch to get there because this place is popular and very small! There are probably only about 10 tables or less inside. There's almost always a wait. Even though we arrived a little after 5 (super early!!!), we had about a 30 minute wait. That was all fine and good because they have a nice little patio area where the adults were able to sit down and enjoy a cold bev while the boys ran around the grassy areas surrounding the restaurant. There also happened to be a field with a tractor cutting hay right across the street - you know that was pure entertainment for my tractor-obsessed little guys!

At the restaurant fence watching for the tractors!
The food here was great, too. I loved the decor and the ambiance of the whole place. The building used to be a general store so the walls are all shelves and they have restaurant supplies and food storage on the shelves, as well as cool and rustic pieces and decorative items. The ceiling has this awesome metal ceiling tile covering it and it's so neat and interesting! I got the ribs and Thomas got a BBQ plate and he once again "won" in the contest for who ordered best. It's a rarity for him to win but he got me twice on Saturday. You live and you learn, right?!?! Our server was a friend of his from high school and she was so sweet and funny. We loved our dinner at Fisher & Co.!

Since we got there and ate so early, we still had some daylight and time to play after dinner before we had to start the bedtime routine. Abby got his dogs and took a walk over the hill and we all piled in the 4 wheeler to drive up there and join him over the hill. The boys couldn't stop talking about the cows and were so excited to ride in the 4 wheeler (they call it a tractor, but whatever!) and see their friends, the cows. Thomas and I just got to do a joy ride through the hills on his family land and take in the views and fresh mountain air. Can you tell that we liked this...a lot?
Check out the cows!
We all "MOOOOO"ed at them to say hi!

Family selfie in the 4 wheeler

oh hey!

Ryan on the mini John Deere after the
ride over the hill
If you look closely in the picture of Ryan above, you can just barely see a path that leads up a hill - that's where we drove the 4 wheeler on our ride.

We had a full day of fun and got the boys down to bed. I was coming down with some allergy issues and wasn't feeling all that well, so I got in bed to read my book shortly after the boys went to bed. Thomas ended up going out with Joey for some more BFF time (he would never call it that, but I would!) and beer. 

We didn't have a whole lot going on on Sunday. We decided to skip church in Tazewell so that we could get on the road a little earlier and salvage a little bit of Sunday at home to get a few things done. 

It was a great weekend, an opportunity to try some new restaurants we'd never been to, and a chance to spend some time with family and close friends. It's about a 4 to 4.5 hour drive from our house to Tazewell and is totally worth it to get up there. I wish we could go a bit more often than we do, but we like to make an effort to go during the holidays and over the summer, at a minimum. We hope to get up there for the Clemson/VT game this fall since Tazewell is not too far away from Blacksburg! TBD.... :)

Thursday, June 29, 2017

VBS 2017

Last week our church hosted Vacation Bible School, aka VBS, and it was the boys's first time to go due to age requirements (and my willingness to give it a try with our crazy crew)! I volunteered for the event and was the crew leader over a group that included my boys and 3 other 3-year-olds. I also had a youth helper to keep the kiddos in line for our crew and we joined up with another crew of 3-year-olds to do our rotations. It was such a fun experience with music, dancing, crafts, playtime, story time, prayers and fellowship. The VBS theme was Hero Central, which had superhero characters and themed songs woven in.

Bildergebnis für cokesbury vbs 2017


The boys loved VBS! I learned quickly that since it was during the evening (6 - 8:30 pm each night), I needed to pack a snack/light dinner for them to eat in the car on the drive from school to church (quesadillas and sandwiches were pretty good choices). They would get another snack and a popsicle during VBS, but if they didn't have something at least a little substantial, it was not good. Also, the time frame created late nights for us each night last week. After baths and milk, the boys were getting in bed between 9 and 9:30 and they had to be up again at regular time the next morning for school. Sleepy boys! Sometimes their VBS behavior would give away how tired they actually were, and it didn't help that Mama was their crew leader (I think they would have listened better to someone else if I wasn't around). EEK. So, they weren't always exemplary, but we survived!

Ryan took off a couple of days due to his seizure last Monday, but he was there for the first and last nights. Stokes also took off a day when he wasn't feeling well at school and had a little fever. William had perfect attendance for VBS!

After working all day, then doing VBS in the evenings, I was exhausted each night! It take a lot of energy to corral 3-year-olds for a few hours!

Funny note: the boys loved VBS and each day they would be all excited to go when I picked them up from school. They lovingly referred to it as "BBS" - I guess it is a little difficult to distinguish between a V and a B when you don't know what the letters stand for. Ha!

My Superheroes...

Stokes

Ryan

William

Bubbles!


Singing and Dancing!


The boys with Flame and Captain Shield!



Here's a picture from one of the sweet girls that was in my crew (she made it just for me)! Things like this make the tiring evenings all worth it.


We will plan to be back at VBS next year after having such a positive experience this time on our first go round.

Wednesday, June 28, 2017

Celebrating DAD and happy day

Father's Day was extra special this year because it was also Thomas's birthday! They're always going to be around the same time, but to have them on the same day this year made it a double awesome day.

I got the annual DAD picture for him. I think this will be such a treasure in the upcoming years. Can't you just imagine seeing 18 or so of these pictures lined up? I actually missed 2015 (whoops) but I'm on a mission to get them every year from here on out. For past pictures, check out the bottom of this post! ;)

We love DAD!

It's hard to choose which picture is best because I took so, so many of these pictures and in each one 2 out of 3 are smiling or looking at the camera or doing something cute and the other one is totally not into it. This is when I realize that it may be a better idea to transpose 3 separate pictures together, which I have done in previous years.

The whole weekend was fun. We went to the pool for a while on Saturday afternoon.




I got a babysitter for us that evening and Thomas and I went out on the town! We actually stayed our in our area versus going downtown but we had a fabulous time!

First off we visited the bar at Arizona Steakhouse to get a cocktail before dinner.



Then we went to dinner at Stella's. This is seriously an incredibly fabulous farm to table restaurant in an unassuming little shopping center not too far from us.


birthday dessert for the birthday boy!


We had such a fun date night in honor of both Father's Day and his birthday.

Sunday was a great day all around. I let him sleep in (relative term because there's really no such thing as sleeping in, but he didn't have to get up right when the boys awoke) and had a yummy breakfast cooked for him. After breakfast all the boys wanted to love on their Dada.

This is a great way to start any day!

Then we went to church and then came home and continued the celebration!


birthday cookie cake time
Then it was time to open presents. I made sure that he got double the gifts so that he wouldn't feel slighted to share his birthday and Father's Day. 


Tickets to Jason Aldean

Daddy snuggles


Making Ryan laugh

We love you, Thomas, and are happy to celebrate you double! You're the best dada and husband around!

Prior years's DAD pictures!

2014

2016